Sympathy Candy

I knew there was a reason for Melanie's poor behavior all week: she was gearing up for a seizure. Many Dravet kids have that in common, and it looks like Melanie is joining that trend.

Just a little before getting ready to go out trick-or-treating tonight, while eating supper she began seizing. We have a neighborhood block party sort of night each year, and we had a couple families over for a party. We were eating in the garage before starting a fire and going out for ToT. It looked like Melanie was going to miss out, after an entire day of anticipation, but she heard the kids playing outside and mumbled, "I-ahh-trick-a-treat!" She begged and I was not about to deny her. So, SO thankful for the back carrier made by a Dravet grandma! We made it all the way up and down our street, three blocks. I was honest when people asked or commented on our arrangement, and we got some extra sympathy candy. :-) So, there's something.

I'm going to go take a hot shower now and rest with the heating pad...

Had no idea her costume would be so fitting tonight!

She was pretty weak, but very happy to go out in the fun.